Showing posts with label Doctor update. Show all posts
Showing posts with label Doctor update. Show all posts
Tuesday, June 5, 2007
May 21st update
We had another appointment with the Perinatologist today. We had another ultrasound too. The newest news is that now they believe Isabel has Bilateral Renal Agenesis also known as Potter's Syndrome. It just means that they don't see any kidneys at all. At one point, someone thought that there was one multi-cystic kidney, now they believe her kidneys never developed at all. She has no kidneys. They also say there is no amniotic fluid at all. She is also still in the breech position. No one expects her to move, with no fluid. She doesn't move very much, just little small jerks or shudders. It's sad.She has grown steadily from the last time we had an ultrasound, so they question my due date. I know when I had my LMP and I also know when I had the positive pregnancy test, but going by her measurements, they say my due date is August 17th. My original due date is July 14th. This was also depressing news for me, as I now get to be pregnant an extra month (possibly), not to mention the torture of drawing this whole thing out even longer. They say that if she truly was growth retarded, she wouldn't have grown much in the last 3 wks. It's confusing. I don't really understand what is going on.I also have developed gestational diabetes, so if she grows into a large baby, which is what they often do, that would pose more of a problem with labor, being that she is breech.It was a tiring day.
Friday, June 1, 2007
Renal Agenesis
God is our refuge and strength, a very present help in trouble. Therefore we will not fear. Though the earth be removed, and though mountains be carried into the midst of the sea; Though the waters thereof roar and be troubled, though the mountains shake with the swelling thereof. Psalm 46: 1-3
We have recently received some devastating news about our baby. We had an ultrasound on Friday, then had another more extensive ultrasound on Saturday to confirm what Friday’s had found. I am 29 weeks along. The baby shows severe growth restriction. It is only measuring 23 weeks 4 days. As far as they can see, the baby only has one kidney, and this one is filled with cysts (multi-cystic) and therefore only working just a bit, if at all. The doctor cannot find a bladder. Since there is no / very little kidney function the baby is unable to pee, therefore there is almost no amniotic fluid. They usually see 10-26 cm of fluid, I have 1cm. Since there is no fluid, the baby’s lungs have not been able to develop. The baby’s movements are very limited also because of the lack of fluid. The doctor said this is just 1 in 4,000 and we get to be the 4,000th.
The prognosis is very grim. Aside from a miracle from God, there is nothing they can do to help the baby and told us it will certainly die either in the womb or within minutes of birth. After receiving this news, we wanted to know what the sex of the baby is, but since there is no fluid, it’s very difficult to see clearly.
The options they gave us were pretty horrible:
Clearly these are not options we were interested in.
We have decided to do nothing except pray and wait. The baby could die in the womb, or I could carry it another 11 wks to term. I should be able to have the baby vaginally either way.
Obviously, we are so sad at this news. We’ve had a lot of tears here and I don’t see them stopping anytime soon. When Sophia sees me crying, she comes up to me with a Kleenex and a kiss saying, “Oh honey…honey…happen?” or “Mama sad?”
We know God is in control. We would appreciate your prayers.
We have recently received some devastating news about our baby. We had an ultrasound on Friday, then had another more extensive ultrasound on Saturday to confirm what Friday’s had found. I am 29 weeks along. The baby shows severe growth restriction. It is only measuring 23 weeks 4 days. As far as they can see, the baby only has one kidney, and this one is filled with cysts (multi-cystic) and therefore only working just a bit, if at all. The doctor cannot find a bladder. Since there is no / very little kidney function the baby is unable to pee, therefore there is almost no amniotic fluid. They usually see 10-26 cm of fluid, I have 1cm. Since there is no fluid, the baby’s lungs have not been able to develop. The baby’s movements are very limited also because of the lack of fluid. The doctor said this is just 1 in 4,000 and we get to be the 4,000th.
The prognosis is very grim. Aside from a miracle from God, there is nothing they can do to help the baby and told us it will certainly die either in the womb or within minutes of birth. After receiving this news, we wanted to know what the sex of the baby is, but since there is no fluid, it’s very difficult to see clearly.
The options they gave us were pretty horrible:
- “Terminate” the pregnancy – By a ‘D an E’, (Dilation and evacuation) this would be an abortion.
- “Terminate” the pregnancy – by inducing labor and then injecting the baby with a drug to stop it’s heart BEFORE it is born.
Clearly these are not options we were interested in.
We have decided to do nothing except pray and wait. The baby could die in the womb, or I could carry it another 11 wks to term. I should be able to have the baby vaginally either way.
Obviously, we are so sad at this news. We’ve had a lot of tears here and I don’t see them stopping anytime soon. When Sophia sees me crying, she comes up to me with a Kleenex and a kiss saying, “Oh honey…honey…happen?” or “Mama sad?”
We know God is in control. We would appreciate your prayers.
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