We have recently received some devastating news about our baby. We had an ultrasound on Friday, then had another more extensive ultrasound on Saturday to confirm what Friday’s had found. I am 29 weeks along. The baby shows severe growth restriction. It is only measuring 23 weeks 4 days. As far as they can see, the baby only has one kidney, and this one is filled with cysts (multi-cystic) and therefore only working just a bit, if at all. The doctor cannot find a bladder. Since there is no / very little kidney function the baby is unable to pee, therefore there is almost no amniotic fluid. They usually see 10-26 cm of fluid, I have 1cm. Since there is no fluid, the baby’s lungs have not been able to develop. The baby’s movements are very limited also because of the lack of fluid. The doctor said this is just 1 in 4,000 and we get to be the 4,000th.
The prognosis is very grim. Aside from a miracle from God, there is nothing they can do to help the baby and told us it will certainly die either in the womb or within minutes of birth. After receiving this news, we wanted to know what the sex of the baby is, but since there is no fluid, it’s very difficult to see clearly.
The options they gave us were pretty horrible:
- “Terminate” the pregnancy – By a ‘D an E’, (Dilation and evacuation) this would be an abortion.
- “Terminate” the pregnancy – by inducing labor and then injecting the baby with a drug to stop it’s heart BEFORE it is born.
Clearly these are not options we were interested in.
We have decided to do nothing except pray and wait. The baby could die in the womb, or I could carry it another 11 wks to term. I should be able to have the baby vaginally either way.
Obviously, we are so sad at this news. We’ve had a lot of tears here and I don’t see them stopping anytime soon. When Sophia sees me crying, she comes up to me with a Kleenex and a kiss saying, “Oh honey…honey…happen?” or “Mama sad?”
We know God is in control. We would appreciate your prayers.