Monday, May 25, 2009

Baby Faith

I wanted to share a very special little girl with you. Her name is Faith Hope. She passed away after living 93 days and defying the medical experts. She had anencephaly.

As I was reading through her blog from the beginning, I was shocked at the treatment that the doctors were refusing to give to her baby that was going to be born. Here is a brief clip from this post:

He said that they never recuscitate babies with anencephaly. I asked him, "What do you mean by 'resuscitate'?" He said, "We won't take any measures to prolong the baby's life. The only thing we do is swaddle the baby in a blanket and give the baby to the mother." He said that they would not even suction out her airway if needed. I said "You wouldn't even suction her? Why not?" and he replied very sternly, "Why WOULD we?" I said, "Umm... because I would want you to?"

My GP asked about painkillers to comfort her and he said, "It all comes down to futility. It is FUTILE to give a baby pain medication if the baby cannot benefit from it." And he went on again about how she only had a brain stem and could not feel (sigh...).

Here's one more:
"anencephalic babies are useless for all practical purposes other than spare parts for others."(Ronald Cranford, Chairman of the Ethics and Humanities Committee of the American Academy of Neurology)

I would like this doctor to look at this video of Faith laughing or the one where she wants her "soukie".

I am proud of how Faith's mother Myah stood up for Faith, while the specialist made her feel it was pointless. She valued the life God gave her, and loved her baby every second, right up to the point where she gave her to God.

Our babies don't have to be perfect to be loved. It's not a failure to have an imperfect baby.

Take some time and read about Baby Faith's beautiful life.


Anonymous said...

Myah is definatly one of the strongest women I've had the pleasure of internet-exposure to. The efforts and steps she took to make sure that her miracle daughter was given a full life - if inevitably short - is inspiring and worthy of recognition. She's truly a blessing in the flesh.

The Tellinghuisen Family said...

Oh my gosh, brought tears to my eyes to read about how that doctor was towards that mother/baby! What a precious little girl!