Isabel Hope: 99 Balloons

Tuesday, January 22, 2008

99 Balloons - Eliot's Story

3 comments:

Bethany said...: I watched this incredibly moving video a few months ago. I cried then and I have cried every time I watch it now. It is so beautiful, the love that these parents had for their child, and I know your love for Isabel is just as pure.

Your blog about Isabel makes an impact on others hearts just as this video does, and I know you have encouraged many people's hearts through your words.; February 6, 2008 at 7:41 AM
Debra said...: Thanks Bethany, I do hope that some people out there can be encouraged through this blog.

I love this video of Eliot's life. I love how positive his parents are, they don't seem intimidated by his Trisomy 18, but loved and appreciated every day they had with him.; February 6, 2008 at 10:35 AM
Muncie Small Engine Repair said...: I enjoyed reeading this; November 24, 2022 at 6:16 AM

Summary

Our family was excitedly expecting our 4th baby and planning another homebirth like all the rest when an ultrasound at 7.5 months showed Isabel had no kidneys. This is called Bi-Lateral Renal Agenesis or Potter's Syndrome. A baby with no kidneys does not urinate, therefore there is no amniotic fluid. The amniotic fluid is what the baby breathes in and out of the lungs, which also develops the lungs and prepares them for breathing air. We were told there was no possibility that Isabel would live after birth. Her lungs would not function. So we prayed and waited for Isabel to be born. We did not know how long she would live.

Our 5th baby, Samuel, was stillborn October 21, 2009 due to Trisomy 13.

How to Cope

Grieving parents may feel a sense of emptiness for weeks, months or years after experiencing their loss. The grief felt over losing a baby through premature birth or from a fatal birth defect is one of the most intense. All parents must feel free to express their love for the baby they have lost. Some of the difficult and painful aspects of grieving for the loss of a baby are listed here:

Engorgement and milk in the breasts can be a painful physical reminder for a mother that she has no baby to nurse.

Fathers need opportunities to express their grief in their own way. It is important to realize that each individual grieves differently.

Parents often need assistance in talking with their other children about the baby's death.

Grandparents often grieve for their grandchild, and may also find it difficult to deal with the pain of their children.

Family members and friends often find it hard to talk about the baby, and inappropriate remarks may cause further grief.

Seeing pregnant women and babies is often painful for months after the loss of a baby.

Anniversaries of the baby's birth and death often bring back parents' feelings of grief and loss.

From http://www.empty-cradles.com/infantloss.htm